Supporting Families with Rare Disease
Join us in our efforts to raise awareness and lift up families battling rare disease like ours
About Johnson Rare Love
Our Mission
After receiving our son Rhett’s rare disease diagnosis, we knew action was our only path. At the Johnson Rare Love Foundation, we are dedicated to raising awareness and funds for rare diseases like Ataxia Telangiectasia. We aim to support families affected by other rare conditions while contributing to vital research efforts and advocacy.
About Us
Our family of 4, originally from WV, now live in Fort Mill, SC. We began our journey with rare disease in 2019. We‘ve raised over $100,000 for A-T Children’s Project but know there’s more to be done. Rare disease needs community, resources, and hope. We aim to be that for families like ours.
Help Our Cause
Your support and contributions will enable us to meet our goals and improve conditions. Your generous donation will fund our mission.
